Genetic Ethical Dilemmas Folding out that you are having a baby Is supposed to be one of the most excellent times of your life. I cannot Imagine how worried Erin and Dan were when they found out that Dan was a carrier of Huntington disease (HAD). I can only Imagine how heart wrenching It would be to find out that the baby has a 50% chance of acquiring the mutated gene for HAD and that there Is no cure. While Dan Informs his doctor of the results of his genetic test, however he fails to mention anything to his Immediate family and his own sister dies three years later.
Dawn’s brother, Larry, is also trying to get life insurance unaware that he may be a carrier of HAD and happens to see the same physician as Darn Ethical considerations need to be addressed before any party takes action. First, should the baby be tested parentally for the HAD gene mutation? If so, should the results be released insurance company to determine coverage for the baby and Dan? Secondly, is it ethically wrong for Dan not to tell his immediate family that he was a carrier of HAD and recommend they also get a genetic test?
Third, should the physician release Lorry’s family history to the insurance many despite that Larry has not had a genetic test and unaware of his brother’s results? The genetic counselor or physician does not have any obligation to inform Dawn’s relatives to preserve Dawn’s autonomy (Centre tort Genetics Education, 2013). However, Dan should be Informed that his siblings have a 50% chance of developing HAD, and by letting them know that HAD runs In the family It allows each sibling to have a choice of whether or not they want to get tested (Centre for Genetics Education, 2013).
Dan also needs be counseled about the specifics of HAD, so that he can be adequately repaper to deal with the psychological effects caused by the results of his genetic test (Centre for Genetics Education, 2013). In deciding to inform Larry about the testing result, the genetic information is protected by HIPPO and the results will be kept confidential unless Dan has given written consent for the physician or genetic counselor to release them (Lea, Williams, & Donahue. 2005).
Larry Insurance does not require him to have a genetic test and since it is unknown whether he has the gene mutation for HAD, the family history should not be revealed to the insurance many, as it would be a breach of confidentiality to Dan (Centre for Genetics Education, 2013). Medical insurance companies should not base insurance coverage on the results of Dan and his baby’s test, if tested. Unless prenatal testing was completed on the baby, there is no way to know if the baby will have HAD until he/she is tested.
While Dan knows that he will eventually develop symptoms for HAD, he should still be able to get Insurance In the united states. In 2008, Bush signed Genetic Information Nondiscrimination Act (GINA) of 2008. This act protected Americans from genetic scarification from insurance companies and employers (National Human Genome Research Institute [NIGHT], 2012). Ethical dilemmas for genetic testing will continue to be an Issue as It becomes providers to know the ethical dilemmas that will arise when an individual tests positive for a genetic disease such as HAD.
Since there is no cure for HAD, counseling should be readily available to help the individual process their thoughts and emotions (Airbus-Alone, 2011). In Erin and Dawn’s case, they will need counseling in regards to Dawn’s genetic condition and the potential of their baby inheriting HAD. Erin and Dan should be discouraged from having the baby tested parentally as it takes away the baby’s future right to know and could possibly cause psychological stress (Airbus-Alone, 2011).